As March is Brain Tumour Awareness Month I thought I should write something. I feel I have moved into the category of ‘living with an inoperable brain tumour’. I am not undergoing any cancer treatment as I am still waiting to hear from Sheffield. I did phone them this week to chase and they had STILL not heard the results of my most recent tests – a visual field test – which I had done on 12th January. This was to test my peripheral vision – or as I kept calling it – my profiterole vision. I had the test done in the Eye Hospital on the ground floor of the JR building of which Mr G’s office is on the 3rd floor. Considering the execrable administration I have encountered, I nearly offered to walk the test results upstairs myself, but I thought that may be rude. How I wish I had!
The test itself was tragi-comic. They covered my right eye and with my left I had to look at a screen where essentially lights are flashed on in various places, and I had to press a button whenever I saw a light. So the lady flashed the lights and I duly clicked the button. She mapped my profiterole vision onto a chart and then she moved on to my right eye.
Eye Lady: “How much vision do you have in your right eye?
Eye Lady, with no sense of irony: “Oh. I can’t test you then. I can only test people’s vision who can actually see. If you can’t see then you need a sight test with an Opthalmologist. Please take a seat in the waiting room and I’ll see if I can find one.”
Eventually an Opthalmologist was discovered in the Eye Hospital (amazing) and she set up the machine to do my right eye. She gave me the button and started the test. Now of course I know what the machine sounds like when the lights are flashed on and off, but I see no lights, or indeed ships. So really what I should have done is hand carried this entirely blank chart up three floors and put it in Mr G’s pigeon hole myself.
So still ineptitude among the NHS admin staff and still no date for Gamma Knife treatment. There may be some light at the end of this tunnel, but I can’t see it. With either eye.